Senator Calls For More Scrutiny Of Home DNA Test Industry | NBC News“The data, however, should be owned by the patient. Their Physician can help direct them on how to apply the information contained in WGS to maximize its benefits,” states Michael Tetreault, Editor of Concierge Medicine Today. “Patients need the ability to securely store, use, and understand genetic data.” Concierge Medicine Today advises this should be accomplished through physician involvement and technology that integrates genetic data into software applications [apps]. Software apps are now available that analyze genetic data and transform the data into actionable information that can have a real impact on health. ~Read Full Industry Position Statement by Concierge Medicine Today here …
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Senator Calls For More Scrutiny Of Home DNA Test Industry | NBC News
Schumer Warns on Genetic Testing Agreements Nov 27, 2017 | Senator Charles Schumer (D-NY) warns consumers that companies selling home DNA tests could, in turn, sell their customers’ genetic information, the New York Post reports. Schumer says that the terms of service of companies like 23andMe, Ancestry, and MyHeritage aren’t always clear on what they may do with users’ genetic data and that the agreements could allow companies to sell their customers’ genetic information to third parties, NBC News adds.
(NBC News)– It’s in our genes to be suspicious of fine print.
So, with the holiday season in full swing, Sen. Chuck Schumer, D-N.Y., on Sunday called for more scrutiny into popular DNA testing kits — saying unknowing customers may be putting their genetic information at risk of being sold to third parties. “These are the kits where you swab your cheek or maybe spit into a little vial send it back to a company and in return they’re unravel your DNA,” Schumer, the Senate Democratic leader, said at a news conference Sunday morning. Schumer cited the rising popularity of home genetic kits and ancestry services, such as Ancestry, 23andMe and MyHeritage, and said some of their terms-of-service agreements weren’t clear on just what companies could do with your genetic information. “Here’s what many consumers don’t realize, that their sensitive information can end up in the hands of unknown third-party companies,” he said. “There are no prohibitions, and many companies say that they can still sell your information to other companies.”
“Now, this is sensitive information, and what those companies can do with all that data, our sensitive and deepest information, your genetics, is not clear and in some cases not fair and not right,” he added.
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